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Help Elon’s family cover expensive surgery & care
Elon Marler, 3 years old, has Dravet Syndrome, a rare severe form of epilepsy and will be having a second brain surgery in the hopes that we can control his seizures.
Isabella Marler writes: My son Elon Marler has a very severe seizure disorder called Dravet syndrome. His first seizure happened when he was 8 months old. It lasted an hour and 45 minutes and we have been battling the seizures since.
He has on average over 100 seizures a day. If playing he can have 100 in an hour. He had his first brain surgery on September 28th 2021 and unfortunately it did not work.
The name of the surgery is a corpus callosotomy, sit brain surgery. The first surgery consisted of splitting his brain 2/3 of the way to see if that was enough to slow down the seizures.
During the second surgery they will completely sever the left and right side. Side affects include, 6 weeks or more of atonic mutism, he will be unable to move or talk.
He has a greater risk of never being able to talk again, stuttering, losing control of a limb, and a risk of infection, death and more. He will also be having a vagus nerve stimulater placed in his chest up his neck to his brain which will send a burst of electricity to his brain to help control seizures as well.
Our family has been through so much the last few years. We have lost our home twice and struggle to make ends meet constantly over the years due to numerous doctors appointments and losing our jobs due to the around the clock care Elon requires.
Due to Covid, our 1 year old daughter, is unable to attend appointments meaning someone also has to stay home with her. My husband recently lost his job due to Elons appointments and the surgery and I currently work for Instacart on my own schedule so that I can take him to all of his appointments and therapies.
Anything donated will help our family survive as we go through a second surgery. Our family will have no income at least 6 weeks during the surgery.
It will also help cover the medical bills that we will accrue after the surgery.
Elon is such an amazing person and so strong. He never gives up no matter how many times he falls and has seizures. He loves to play with his sister, and loves Blippi.
He loves to give kisses and loves to count. We ask anyone who reads this to please pray for Elon, our family, his surgeon, doctors, anyone else included in this surgery.
Isaiah 41:10 Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you.
